Congenital Insensitivity to Pain with Anhidrosis

There are five variants of this disease, but what you're referring to is the lack of pain from your piercings. I lack the pain when I get piercings as well. This is a totally different thing that occurs. The pain depends on the person when it comes to body modifications. A person with this particular disease does not have the sensation of pain and sometimes cannot produce sweat, which makes it hard to regulate body temperature.

I've been doing research on it as well for a paper on a medical disease. xD

My Brother & Sister are now 20 & 21 respectively :)

They do have mental retardation as well as broken bones in the legs especially. My sister cannot walk and my brother limps badly.

But they are healthy in terms of bodily functions and living life happily.

Let me know if ppl here need any help in terms of knowing more about this.

I am a 60 year white female who has a PHd and two masters degrees. Back in 1950 when I was born, there had been no research on CIPA. I now wear a med alert bracelet which states my full name and that I DON'T FEEL THE SENSATION OF PAIN It also does say that I am allergic to pain medication(In reality, i CAN TAKE TONS OF MGS OF ANY PAIN MEDICINE AND I HAVE NO REACTION TO THE MEDICINE AT ALL, I COULD TAKE BOTTLES and BOTTLES OF DILAUDID WHICH IS A STEP UP FROM MORPHINE AND NOTHING WOULD HAPPEN UNTIL MY HEART WOULD STOP BEATING. The conditions do not frighten me at all. I go through the day without even thinking about my condition---I am super busy as a professional educator and I sleep only 4 to 6 1/2 hours at night which is induced by 12.5 mg of ambien--a hypnotic drug for sleep. If I didn't have the ambien, I wouldn't sleep at all. I am carefully monitored by my primary doctor who I have had for 15 years and works in DC. I was a hyperactive child.Though, at the time, they had no labels for such a condition of hyperactivity. I was also a DES baby with a congential right eye defect, right ear hearing defect, right nasal deviation too. I weighed 4lbs at birth. Birth was by C Section. I inherited "intelligence" and a natural curiosity about everything. I was not afraid to try anything. I crawled up on the stove with the burner's on right next to my mother and my mother almost had a heart attack--I was only on the burner's for a second because my mother screamed and pulled me off--but, I felt no pain. I rolled over my sister at three in my sleep and hit the concrete floor--suffering a very bad concussion and remember crying in the crib because my mommy wasn't with me. I was throwing up but I wasn't feeling pain.
In my adult life, I fell and broke my right arm on the ice, no pain, but I noticed when I went back to teach a class of 9th graders that it was difficult for me to open my desk drawer, I couldn't manipulate my fingers into a natural position, so I went downstairs after class during my planning period and told the Vice-Principal that I was going to the local er because i Had just broken my wrist. Though he remained amazed at my nonchalance, it was confirmed at the hospital that it was broken. I had a car accident and totaled my car. The ambulance arrived and encouraged me to go to the hospital which I legally refused. I just said that my wrist kinda hurt at this specific point--there was no bruising swelling etc. I just said I would just put some ice on the pinpoint that "sorta was sore". I saw my primary the next day, told him about the accident and said that at this particular point on my wrist is "was sort of sore". I saw him again about five weeks later and just said it was still "sort of sore sometimes" He gave me a referral to the orthopaedic doctors downstairs and three weeks later I had my appointment stating that at a particular point on my wrist it had been sore but was feeling better after almost eight weeks. He exrayed my left wrist and I walked around in a cast for three and 1/2 months which I found terrible difficult to coordinate my active life with--driving was nearly impossible and I DIDN'T HAVE TIME TO HAVE A BROKEN WRIST CASTED UP TO MY ELBOW for almost four months.

Additionally, I have had 3 falls over the past 10 years, like following over one of my cats chasing the other one from room to room and landing and breaking a 3 foot high porcelien cat, cleaning the mess up from the broken pottery was my first priority; then I looked down and saw all the blood running down my leg. So, i went into the bathroom, took a shower, to get the blood off, got dressed again for work, started the car to pull out and noticed that my dress had blood on it. Car still running, I took a kleenex and wiped away the blood and saw that it was going to continue to bleed so I decided I would run by the local er and have them clean it up and put an ace bandage on it before going to work--if I timed it right--I could still get to work on time. So that's what I did. On the ER form I just said I had cut my leg starting at the knee and going
down about four inches Would they just take about five minutes to clean it up? Thank you. The triage nurse eventually called me in and said to me, "you cut your leg at the knee, does it hurt? I responded "not at all" She then said, Would you lift your long dress for me to take a look at your cut. I said, sure. I THINK THE NURSE ALMOST FAINTED AND SHE PRESSED SOMETHING ON HER DESK AND THE DOCTORS CAME RUNNING IN. They were horrified at what they saw--cartiledge was hanging out of the cut and I insisted that I was not in pain, just clean it out, stitch it, and bandage it, and I would go on to work. I signed a legal form not to take any shots of lidocaine that they wanted to give me so I wouldn't feel any pain and I just kept telling them that I just wasn't feeling any pain. After they stitched me up, gave me a tetenus shot and a prescription antibiotic to prevent infection they asked my if my primary
doctor who worked out of the hospital knew that I had this condition and I said "Sure he does( and he did) he never has made a big issue about it nor do I. I have had two other massive stitching sessions in the ER on my leg and on my chin with no medication and no pain. I finally put a dead tree root on my property through my bare feet and that dropped me to the ground but I wondered why--Cartlidge and muscle if I remember correctly were oozing around the stuck tree branch. I knew I had intellectually hit a primary nerve in my foot as I had an odd sensation going up the side of my leg to my thigh. I sat on my rear until I got to the car climbed in, asked my step-son to get the keys to the car and told him I'd be back in about an hour, I was just going down to the center of our Pocono Town. I got to my doctor's office at noon when they were closing for lunch and said that I needed to see my doctor for a few minutes. The secretary took one look at my foot and screamed for my doctor. He wanted to carry me back to the surgical suite, I preferred to walk. He wanted to give me a local. I preferred he wouldn't. He deferred to my judgement and we laughed at the situation--I had been looking for my cat on the forested part of our property as someone had yelled black bear in your yard. I went down on a tree branch that was dead--when you think about it it is a little funny. He removed so much forest from the bottom of my foot, and cartiledge, sewed me up, gave me a tetnus shot and antibiotics and said to stay off of it for three days. He gave me crutches. I told him I could handle everything BUT Sunday Morning I had to preach to approximately 200 members of our church. We compromised and I got to preach.
So, I wear a med-alert bracelet that also has my name, my doctor's name, his phone number, my next of kin and his phone number on my third med-alert bracelet and I go about my normal busy professional and personal life with too much adrenaline in my system. They are really afraid of getting into the position of choosing to give me an epi shot because of the amount of adrenaline in my body. But, I have allergies seasonally and seriously and am totally and severly allergic to all antihistamines--including benedryl, clareden and sudafed.

I do sweat profusely and run the air conditioning in the winter in Washington, DC. on high so I am not sure if I aM totally a CIPA lady. I match all the other symptoms. I feel the "warmth" of an emotional hug, I feel the grip of a handshake--I just don't feel pain and I am hyperactive and well known professionally in this area of the country. THe answer is no--i haven't had any genetic testing but my daughter does feel a little pain but not much. She is 32 years old. My son has a natural response to pain and he is 33. If anyone would like to communicate with me I will reply and give you as much specific information that I can.

Hello Ms Brenda, I would love to talk to you some more about your condition, for you see, I have never heard of such a disorder until a coulpe of weeks ago when I came across a plead for help from a father for a 5 and 7 year old boy and girl.

Regards,

Iza

I don't have the answer to your question. But I would like to know more about your disorder, no offense. Is it where you feel no pain at all? (You said CIP) or is it something a little different. If you have the time to reply back, that would be great. I have been wanting to meet someone that cant feel pain, I have some question about it. Well thanks,
Hope to here from you.

>Justin